Ariadne Labs
“Ariadne Labs is a joint center for health systems innovation at Brigham and Women’s Hospital and Harvard T.H. Chan School of Public Health. Our mission is to save lives and reduce suffering by creating scalable solutions that improve health care delivery at the most critical moments for people everywhere.” —From the website
Center to Advance Palliative Care
“The Center to Advance Palliative Care (CAPC) is a national organization dedicated to increasing the availability of quality health care for people living with a serious illness. As the nation’s leading resource in its field, CAPC provides health care professionals and organizations with the training, tools, and technical assistance necessary to effectively meet this need.” —From the website
Coalition to Transform Advanced Care (C-TAC)
“Our Mission: The Coalition to Transform Advanced Care (C-TAC) is dedicated to the goal that all Americans with serious illness, especially the sickest and most vulnerable, receive comprehensive, high quality, person and family-centered care that is consistent with their goals and values and honors their dignity. We will achieve this by empowering consumers, changing the health delivery system, improving public and private policies, and enhancing provider capacity.” —From the website
Conversation Project
“The Conversation Project is a public engagement initiative with a goal that is both simple and transformative: to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected. We believe that the place for this to begin is at the kitchen table—not in the intensive care unit—with the people who matter most to us before it’s too late. All of our materials, including the Conversation Starter Guide, are available to download and print for free.” —From the website
Five Wishes
“Five Wishes is changing the way we talk about advance care planning. It’s more than just a document. Five Wishes is a complete approach to discussing and documenting your care and comfort choices. It’s about connecting families, communicating with healthcare providers, and showing your community what it means to care for one another.”—From the website
Hospice Services
Use this link to better understand the core services that all Medicare certified hospice agencies are required to offer: cancer.org/treatment/end-of-life-care/hospice-care/who-provides-hospice-care
Kubler-Ross’ phases of grief
“The five stages are a part of the framework that makes up our learning to live with the one we lost. They are tools to help us frame and identify what we may be feeling. But they are not stops on some linear timeline in grief. Not everyone goes through all of them or in a prescribed order. Our hope is that with these stages comes the knowledge of grief ‘s terrain, making us better equipped to cope with life and loss. At times, people in grief will often report more stages. Just remember your grief is as unique as you are.”—David Kessler, from the website
Maslow’s Hierarchy of Needs
verywellmind.com/what-is-maslows-hierarchy-of-needs-4136760
Medicare’s Home Health Benefit
Use this link to view Medicare’s official booklet on Home Health Care: medicare.gov/Pubs/pdf/10969-Medicare-and-Home-Health-Care.pdf
National Home Funeral Alliance
“To educate families and communities to care for their loved ones after death.” —From the website
National POLST Form
“There is a National POLST Form, but most states still use their own state version of POLST… POLST forms are medical orders that your provider uses to tell another provider what treatments you want when you cannot speak for yourself. Since the POLST form is how your provider tells another provider what you want, the words and phrases on the form use medical terminology. The POLST form was not created for patients to fill out and complete: your provider should be the person filling it out after talking with you.”—From the website
Prepare
“PREPARE is a step-by-step program with video stories to help you: Have a voice in your medical care, talk with your doctors and fill out an advance directive form to put your wishes in writing.”—From the website
Respecting Choices
“Our Mission: Guide organizations and communities worldwide to effectively implement and sustain evidence-based systems that provide person-centered care. Our Vision: Transform healthcare culture by integrating and disseminating best practices to achieve person-centered care. Respecting Choices is a division of the Coalition to Transform Advanced Care (C-TAC).” —From the website
Total Pain
http://pallipedia.org/total-pain
Village-to-Village Network
“What is a Village? Neighbors Caring for Neighbors. Villages are grassroots, community-based organizations formed through a cadre of caring neighbors who want to change the paradigm of aging. Local Villages connect members to a full range of practical support services to help with non-medical household tasks, services, programs, and transportation. Villages also promote staying active by coordinating recreational, social, educational, and cultural programs. These social activities minimize isolation and promote interaction amongst their peers. The Village Movement originated in Boston with Beacon Hill Village, leading the way for a more economically efficient model for aging.” —From the website
Vital Talk
“VitalTalk is the premier training organization for clinicians seeking to advance their communication skills. Just as no doctor is born knowing how to handle a scalpel, the same is true for how to communicate effectively with seriously ill patients and their families. Whether in person or online, clinicians feel safe practicing newly learned skills through VitalTalk’s evidenced-based training methodologies using simulated patients, all in a confidential setting. Our vision is that every seriously ill patient will be surrounded by clinicians who can speak about what matters most and match care to values.”— From their website